Today’s homily moved me. Father spoke about how when we come to communion the Eucharistic minister looks to you and in the pause before receiving the host they acknowledge ‘I know that you are already the body of Christ.’
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I reflected about that. How we ARE the body of Christ. I thought about how I lovingly look at my child and sometimes how it is difficult to lovingly look at him when he is having a difficult time. I pray that I will be filled with more patience to always have eyes that look lovingly upon my child when he is struggling and that I may remember he is already the body of Christ.
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Full homily can be found here:
https://www.facebook.com/share/v/GMdKkmSpRTBQ2KSU/?mibextid=CYgPv5 at minute 19:16-23:23
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I am a people pleaser by nature. It is hard for me to take up space. To be seen. To be heard. This did not make me a very good advocate in the early days.
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Now I feel more confident parenting in public in ways that go against the grain but feel good for our family and our autistic kiddo.
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Just as God knows us best and does what is best for us I too can feel confident that I know what is best for my kiddo.
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“Your Father knows what you need before you ask him.” Matthew 6:8
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Saw this sign while blueberry picking recently and it was a beautiful reminder of the space we are in with our kids. We are planting seeds of faith every day in hopes that their love of God will bloom throughout their lives. While I do not always see the fruits of my work I have trust in the Lord that he is ever present and that His love is flourishing within.
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Your neurodivergent kiddo is not spoiled.
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Well I don’t know maybe they are 😂
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But this comes from my husband who said to me “ugh our kid is so spoiled”. He said this in frustration after our kiddo demanded something else to eat rather than what was prepared.
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I thought about it. I get it. He was born in Poland in the 80’s and understands first hand about food scarcity and this deeply affects the way he views the world.
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I realize the privilege we have in being able to offer our kiddo a variety of foods that make him feel safe and be nourished.
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But as I explained to my husband; our kiddo has fluctuating capacity and feels safe to express his needs. This is actually amazing.
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It reminds me of the time that I had a particularly stressful morning and didn’t pack a lunch. I had a hard day at work and looked forward to leaving at lunch to get a bite to eat. I ordered a sandwich with no tomato. I drove away and was delighted to have stolen some time for myself and to have the chance to eat. I opened up my sandwich and saw tomato. I was ENRAGED. Like irrationally mad. I flung the tomato off my sandwich muttering expletives. I’m telling you - irrationally mad. Later I would laugh. But in the moment my capacity was so maxed that a tomato on my sandwich nearly did me in. And now I think of the friggin’ tomato when my own son is nearly undone by something that seems “so little”.
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1 John 4:16 “God is love, and all who live in love live in God, and God lives in them.”
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Something I do now that I know and can embrace that my son is autistic.
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I let him experience joy in the ways that are meaningful to him.
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I’m not going to lie it was hard for me for a period of time to watch my kiddo not engage in play with other kids. Especially in super obvious times like at a birthday party. I would spend time cajoling him to join the others.
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Now I feel proud that he knows what feels good to him and what brings him joy in these moments.
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This weekend it was creating art while the other kids swam.
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Today while mini putting I realized all the things I naturally do to accommodate my son. Things I did long before we even knew he was autistic.
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I let him win. I know, I know, he won’t be able to ALWAYS win but guess what? He’s 6 and he can win with me. It’s fine.
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I feign frustration and talk out how I process that feeling in hopes he will also use it. A lot of the time he uses strategies I use with him, with me. It is quite adorable.
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I prep him before. I tell him all the information I know. What will it look like, what will it smell like (there were goats and sheep here), what will it sound like (there was a summer camp of kids that came through), how will it feel (hot!) and of course - the bathroom situation lol.
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I let him have redos. I also get it, you can’t always have redos. But we talk about that, and we talk about how this is a good time for redos, to practice and have fun.
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I plan an exit strategy because sometimes it is too hot, too loud, too people-y, too frustrating, and that’s ok too.
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This might not be rocket science. It might also be something that could never work for your kiddo. This is also just a glimpse into one fraction of our life and all the things caregivers of disabled children do.
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